Do not get Dilantin toxicity. Try not to take Dilantin
because, although it’s a mighty, mighty man fighting seizures, it does awful
things to your liver, or so I’m told. And it seems to be capable of making
itself “toxic” even if you don’t take more than you should.
I know! I’m trying
to figure out how that can happen, too. “Surpatheth-ing” my understanding.
Logic would suggest that if you take “X” dosage over a long period of time, and
your blood level stays at “Y”, it should not be able to go to “Z” on its own.
But you’d be wrong about that. You can get splendlidy, stupidly toxic all on
your own.
Got time for a quick story? I know you do. All last week I
felt as though I was not walking well, I was awfully tired, and felt as though
I was losing a grip on things. I called the neurologist’s office, they wanted
me to have blood taken so I set it up for Monday (that would be the 5th)
and continued to stagger on. Kenny and I went to Dallas for Friday night
(delightful surprise from St. Kenny) but I was walking like a drunk on skates.
Now, the best thing (perhaps) about this is you lose all
judgment as to whether something is serious or not. But this time even I was
worried as I staggered down the hallway of a very luxurious hotel.
We came home Saturday, and all was well until about 9pm. I
bolted up from my desk chair (either my pajama pant leg was around my foot, or
my right foot had stopped working, could be either) and fell, headlong, into a
solid oak entertainment cabinet.
I hit the suture line on my skull. Ouch. St. Kenny swears I
blacked out, I know I couldn’t speak for a while and, oh my, if you want to
frighten yourself just go ahead and do that.
Bless him, he called an ambulance and very quickly they were
here. Two ambulance guys and three firemen, each as handsome as could be. (Now,
in civilian life, they might not be so charismatic. But at that moment, they
were all stunning.)
I’ll spare you the details…but picture a cervical collar
(that gives you a sore throat, by the way) and jumping the line on a crowded
Saturday night at the ER.
Happy news. Didn’t break anything. The CT showed nothing
bleeding. It hurts if you fall on ceramic tile. It is entirely possible to
sleep for 48 hours or so with just short restroom and food breaks.
I offer this by update and also a word of caution: DON’T DO
THIS. It’s already Wednesday and I’m as crazy as a sack of squirrels, my head
still hurts, and I am in a generally bad mood. (At least for me. For the rest
of the world that would be sunny skies.) I expect all to be healed any minute
now.
Again, though, it serves as a reminder that “it could have
been worse” is probably wiser and more encouraging than it sounds.
Cynthia - I am a friend of Tracy Bass's. I saw your comments on Dilantin. I had 2 grand mal seizures - one in late 1995 and the second in 1996. After the second one, I was put on dilantin. I started out at 100 mg and am now on 400 mg. I have had blood work regularly and my dilantin level have been dead center and my liver numbers have been normal. Maybe this makes me an exception to the rule.
ReplyDeleteso are you off the juice????? or should I say pills?
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